Living with developmental hip dysplacia
An X-ray of hips that haven’t got to know their counterpart.
The following article is a personal account of living with painful and disfunctioning hips. It is therefore less formal than other articles I have written and is meant as an aid to others who might suffer from similar discomfort.
Congenital Hip Dislocation, or as it is now known as developmental hip dysplacia is more common in girls than boys and there are a number of reasons as to why this may occur, it could be family history or breech birth, it can also be related to your ethnic background, however it is a condition that is no-ones fault, but I am delighted to say there is so much more information and understanding of this condition than ever before.
I have personal experience with this condition, and as I reflect on my issues, I am able to understand more and therefore help not only myself but many others with hip pain.
Since attending a course a few months back with the guru and author John Gibbons, I have spent time discussing glutes with a well-informed guy called Jonathan who studies podiatry and also happens to be the gym assistant at the EICA Ratho.
Each week we discuss imbalances (often our own) but the most effective subject we have discussed is the Gluteus Medius. Jonathan goes away each week trying out new exercises that are of benefit to him, and I go away and tweak exercises until I find something effective for me and we come back to each other. We challenge each other to try the effectiveness of our exercises and discuss the research we have stumbled across. You perhaps spotted us rolling on (or off) gym balls and pilates balls, tripping up over resistance bands, contorting ourselves into banana shapes or even looking like mime actors pushing our hips against walls and more recently trying to run in the form of an ice skater. The results are each week we add to our exercise tool box and aid our hips that allows us to walk straighter and with much less pain. We are both feeling happy with our efforts.
It was only at John Gibbon’s course that I learned the kinetic firing chain for the lateral and back lines, ie hip abduction and extension. I also learned techniques to switch off the dominant muscles pulling the chain out of action, and how to engage and switch on what should be dominant. It was with mixed emotions that I received this information, one half of me elated that finally I had someone that completely understood my own condition that has driven me nuts for more years that I like to admit, but I also felt furious, angry that no-one had ever before taught me this or identified what was actually wrong with my function. And so in order for people to understand why I have reached 40 and been unaware of how to effectively treat or remedy my condition I have to take the emotion out of the equation and look at my own journey of hip dislocation and the recent advances that have taken place in terms of medical research, and use it to help others. Already I shared the exercises Jonathan and I have researched and watched it make positive effects on those who ask me for help. It’s simple education.
My journey ..... so far
I was born 1st Jan 1979 with congenital hip dislocation (family history) both hips out of the socket, the right one more so, as you will be able to see from the pictures and genu recurvatum in both knees as a result from the hypermobility I have.
Look, this is me at the start of my squiffy hippy life.
In those days (Im not that old that I mean for this to sound worlds apart, but when it came to this condition and the lack of understanding then, you will soon see what I mean). Surgery was more than strongly suggested as the answer to my condition. (I must add, there has been major advances in surgical treatment for this condition since then). I have to thank my parents, in particular my father, who wouldn’t let the surgeon come anywhere near me. I believe there was a battle of wills, but my dad won. I am one of the few in the family not walking with sticks or in a wheelchair, hence dad felt strong that this was not going to be the case with me. Dad sat with me every night and massaged my hips under the instruction of another family member and he managed to get the head of the femur back into the socket. As a result I was able to walk. However, as is the case with congenital hip dislocation, you are often left with a pronounced internal rotation, as I was.
Those of you who know me, know that I wasn’t always a therapist. I worked in management, accounts, desk work, boring stuff and stress that I hated and so it was almost inevitable that I was going to get into massage and physical therapy. I think it was destiny. Im fascinated with all muscles of the body, but (admittedly) obsessed by hips.
One horrendously frustrating history involved someone having to obtain their medical notes from when they were a child (thank goodness for data protection).The attending doctor from their childhood had wrote that the mother of the child in question was psychotic, making her believe there is something wrong with her child’s hips, that she was a nuisance and her incessant complaining were a bother to him. That poor child’s hip dislocation has caused her life to be a painful journey of surgery and missing out on many activities due to the lack of understanding (or in that case arrogance) from those she trusted to give her professional, medical help. My heart sank as I listened to this poor person’s experience as a result of the lack of understanding and dare I say, ego of a chauvinistic doctor who insisted he knew best.
I personally attended physio as an out-patient at the princess Margaret Rose Hospital near Fairmilehead, Edinburgh until I was 10 years old. My exercises were to never to sit in a “W” shape with my knees. and then discharged as everything seemed just fine. I wasn’t in much pain, sometimes my knees hurt and I was rubbish at most sports but I was OK. Unless, of course, you looked at the horrendous internal rotation of the right hip, then you could see I was not fine, I was miles away from being fine, and that would come to bite me, hard, in later years.
Me looking just fine aged 6, really??Tsk! And, me learning to dive but observe the internal rotation at right hip
Walking was a bit of an issue as I waddled and swayed everywhere I went, I tried to walk normally but I simply couldn’t. Walking in high heels was hilarious for everyone to watch, butt stuck out and absolutely no balance whatsoever. I didn’t care, I just walked around in boots, I lived in jeans and T-Shirt so that suited me just fine. My life has always been incredibly busy and so, like everyone else, it’s not really bothering me, so I just got on with it.
It was when I got pregnant that the hips got unbearable. I developed Pubic Symphysis 4 months into the pregnancy which brought tears to my eyes every day and continued to do so until approx. 8 weeks after having my little boy. Let me tell you, hypermobility and the hormone relaxin is not a good mixture. That hormone floats around your body for a long, long time after you have given birth causing all sorts of mayhem. Try dealing with that with a child who turned night into day, 2 huskies and a busy clinic that was growing fast whilst embarking on a second degree. That was when the continuing pain of greater trochanter pain syndrome kicked in and I had to start finding ways to fix the problem, which was really only hurdle after hurdle, exercises that didn’t work, stretches that definitely didn’t work, visits to physios, massage therapists, yoga, doctors, x-rays and so on and so forth, you get the picture. No relief, no reprieve and what felt like no time to fix it. But it’s not a quick fix, and it was never going to be and no-one could point me in the right direction.
More recent picture of my 70’s roller skating efforts.
Post pregnancy and pronounced internal rotation still!
So, that brings me to the leap in progress I have made in the last few months with the help to get there from my amazing teacher Dr Bettina Karsten who made me understand that strength was the key to my rehabilitation and to be careful with stretches without strength which made me delve deeper into exactly what that meant. I went to work on my glute maximus and massively improved its flat, useless demeanour, but there was something else missing. It wasn’t getting worse, but it wasn’t getting much better. I was doing everything I was told, so what the hell was still wrong? Good days would come and go, so I knew was doing something right, but I couldn’t isolate what it was – aaaargh, the frustration just brought more tears. I did what I was told by professionals but was getting nowhere.
The body needs balance in order to operate at optimum efficiency. I know, you have heard me say that 100 times before, but agonist to antagonist this balance exists in ratios. Bettina introduced me to some of these ratios a few years back as she and some of colleagues have researched in Germany and Luxembourg and it allowed me to identify a whole host of issues that resulted in the pathologies that hundreds of people have come to see me about. However, this blog is about hips and so I must not digress.
Getting on the right path
When I introduced this blog I mentioned that I had gone on a course with John Gibbons, it was he who said boldly that he knew that most who suffered years of pain with the hips had been instructed to perform abduction exercises and when they complained the pain hadn’t subsided that they were then most likely told they were simply not doing it right, made to keep going and increase the resistance. Followed by the pain increasing and the adductor muscles starting to lock on if they hadn’t already done so, that the adduction exercises were actually making the pain worse as the IT band and TFL grew stronger and the glute medius got weaker, overpowered by its dominant counterpart. I genuinely felt like he was talking to me personally, not the room of over 150 students, just me, that was exactly what I had been told. Everything he said rang more alarm bells than a burglar in a jewel raid.
He then taught us how to test the lateral kinetic pattern making it clear that it should be 1. Glute Medius 2. Tensor Fascia Latae 3. Quadratus Lumborum. Needless to say, I failed that one miserably. I was completely back to front, in fact, im not sure my Glute Medius did much at all. Eager to hear more, I shot to the front of the room telling him about my shocking hips. John indulged my rant and used me as his Guinea Pig to show the other students how to test strength on the Glute Medius. No surprise when I stuffed that test up too. He showed the students how I walked, or more accurately how I swaggered. Trendelenburg Gait. I laterally flexed at the hip, folded over to the right, stepped off, swinging my right leg round and landed my right knee across the midline and repeated the process. A severe Q angle. It’s not that I didn’t know I walked like this, of course I did, I knew how sore my lower back, hips and knees were I just couldn’t fix it, god knows I spent years trying. Adductors tight as hell, QLs short as you could encounter, tight hip flexors for my associated anterior tilt, pathetic vastus lateralis, bicep femoris and glute medius. This was met with an inhalation of breath from the students and a whisper from John telling me that I owned the weakest Glute Medius he has ever encountered. I knew I had a job ahead of me to rectify this mess. He gave me my starting point to start switching off the over dominant muscles to enable my glutes to start firing again using Muscle Energy Technique.
An example of the afore mentioned Q angle - look at the pressure on each joint
I looked on line about Glute Medius isolation exercises and saw a wonderful blog from a physical therapist who is also an ice hockey player and subsequently had glute meds of steel. He illustrated brilliant exercises to help get me started. So off I went, wow could I feel those exercises, and also how rubbish I actually was, but I had something to work on, to measure and to improve…at last!
And, in the usual way of rehab, I hit a stumbling block. I went for a run one day, 5 strides into the run, BANG! I knocked my calcaneus out of place on my left foot, the worst part was, I had not long had a discussion about research related to pes planus (flat foot) and lack of glute strength and had started to try and sort my flat foot with exercises that involve me standing on one foot, coming up on my toes and engaging glutes. I was unable to knock it back over and went to visit the only Chiropractor I trust, Craig Costa. He quickly identified my hips were misaligned causing a chain reaction on misalignments down my legs until it got to my ankle where Craig identified that I had been sitting with my ankle supinated and that my hamstrings were also pathetically weak. Tell me something I don’t know I thought, but this was the final straw for me. He told me I had to up my exercises now and really go for it. Remedying this had now become a mission. The domino effect of this condition was only getting worse. Trying to figure out your own problems whilst you are in a world of pain is not easy and you need the right people to be able to look at you spot where you are going wrong. I am delighted to say I have finally found those people and learned from each and every one of them a lesson that ties in and mirrors what each of them have said and that I completely agree with and actually makes sense.
Things started to improve. But, still it came and went, it just came less often. So something was still not right. Massive improvements, but just not quite there. I just had to follow the domino effect down my leg and rectify each weak muscle that was effected and mobilise each joint back to its neutral position, however, I also found that as I am hypermobile have too much joint mobility can be a hindrance rather than a help and so I found I had to proceed with caution on this one. The remaining muscles that were out of kilter and weak were not going to suddenly become strong on their own, and I was quick to notice that they would fail me and I would fall back into my old ways if I did not rectify it as it affected me, in a chain reaction.
I discovered, if I trained bicep femoris whilst I externally rotated the thigh (well, neutral for normal people) and vastus lateralis and glute medius then I started to get somewhere. It was all about the positioning and I had to hit all 3 muscles in the same session, especially bicep femoris. If I did this I became pain free. Bear in mind, I have been internally rotated since birth, so I have lots of work to do, trying to engage neural pathways is tough, but I have no intention of ever returning to the distracting pain I experienced for years and so I will exercise every day and make sure I continue to walk straight.
I have even begun a Callenetics class (My neighbour convinced me to go, I should have listened to her months before, fear of annoying it I guess). I recommend it highly, it shortens long muscles marvellously well, and there is an incredible variety of exercises for hip and glute strength. The instructor knows about my hip mission and each week gives me a new challenge that I am absolutely loving and grateful for the reward of the hard work. It feels great to exercise and go on long walks again getting strong and this time actually feeling and seeing the difference. And so I feel compelled to make others aware and to encourage them to do something about their hips if they were anything like I was. New research appears constantly, we have moved on massively from 40 years ago, as we continue to learn, we continue to improve.